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Love

Nobody Said Life Was Fair

‘Cause there’s no comfort in the waiting room
Just nervous paces bracing for bad news
Then the nurse comes around
and everyone lifts their head
But I’m thinking of what Sarah said:
That love is watching someone die

Death Cab For Cutie, “What Sarah Said”

The waiting room was our living room; the nervous paces were that of my father, little brother and me. I was bracing for what I still feel guilty about: good news, that it was finally over. My dad was the nurse, and I lifted my head on May 23rd, 1995, as I woke up to his announcement: mom is dead.

Love is watching someone die. That’s what my dad taught me when he chose to take care of her, to have her spend her final years with her family, the ones she loved, the ones who loved her.

I was 14 when she died and I was 12 when she was diagnosed with early onset Alzheimer’s disease. The autopsy said it was actually amyotrophic lateral sclerosis (ALS, also known as Lou Gehrig’s disease) and frontal lobe dementia, but it didn’t really matter; there still isn’t a cure for either one and the end result would’ve been the same.

The only difference, as far as what the misdiagnosis caused, was she was prescribed tacrine and was subjected to frequent liver tests which she hated as a result. A proper diagnosis wouldn’t have spared her life, but at least it would have spared her those much dreaded doctor visits.

I get like this from time to time, but it seems like the last few weeks have been especially harsh. I’ve cried myself to sleep on more than one night; the last few, I’ve even broken down in front of Rio.

The other day he told me to go to Starbucks and write my feelings down. I told him I didn’t want to go outside; he told me he didn’t want me to get too depressed.

Breathe in the oxygen; happiness is a foreign country, but sadness is far too expensive to live in.

excerpt from a poem I wrote years ago

I have reverted to 12, 13, 14, who I should have been then. Grieving. Not the hollowed-out shell of a kid who went back to school the very next day in hopes of a starting a new, less catastrophic life, only to find out about the insensitive whispered miscalculations of her old life by the peers who knew no better.

So here I am now, writing my feelings down, the thoughts that cause both the unexpected and inevitable flood of tears:

She’s gone for good.
She’s not coming back.
It’s not fair.
How can I find her when I don’t even know where she went?
What cruel god would do this to her?
Is there a heaven?
Will I ever see her again?
Why?
She deserved a long, happy life.
My dad deserved to grow old with her.
I deserved a mother, especially during puberty.
I need you. I love you. I miss you.
I’m sorry.
Goodbye.

I was too young then to understand that every last moment was just that: the last. My dad knew; he videotaped the last few weeks of her life. It wasn’t that he thought he’d want to watch it again as much as he knew he’d never have the chance if he didn’t.

She used to scream at the top of her lungs, over and over, until she’d gasp for breath only to do it again. That was the background music to my 13th Christmas. My younger brother and I opened our presents quietly while our older brother pulled ornaments off the tree and our mother screamed.

I hated her at times, and I hated myself for hating her. I hated this woman who stole my mother, and I loved her every time I remembered she was still my mother, regardless of how she was acting now. I hated how selfish I felt for needing anything for myself. I hated that my life had been far from normal long before she was sick. I hated that I couldn’t do anything but watch her wither away into a skeleton.

I dramaticized my life at the time to a point; it was how I dealt with everything prior. My older brother is developmentally disabled, which never felt like an accurate term for how he actually is. That’d be a more appropriate way to describe someone with dyslexia than it would be someone who hits you in the face for crying.

But, that’s who he was and that’s how he was, and my interpretation of the time period is as valid as the way I felt about it.

So, my mother did in fact starve to death on the living room couch. That is how I saw it then and that is just what happened.

But, in the interest of honesty, she’d also smile at you while you walked by, her head barely turning, but her eyes following you the whole way. That was who she was. Someone who was in enough pain to fill the house with her agonizing screams, and someone who could still smile, even with dried tears streaked on her face.

I don’t feel like writing my feelings down anymore. They feel as old and tired as I do.

I Hope The Sky Is Blue

Dear Mom,

I love you too.

The sky is blue, and while the sun blinds me when I look up, I still hope you are looking down.

You said you knew there was a God, because there was a blue sky. I still remember that, and while I didn’t understand at the time, I understand now: you desired heaven, and you wanted to believe what I want to believe, that your mother was there looking down at you as you looked up for her.

I hope your dreams came true, and I hope you are now there with her, and your father, at peace, at Plum Lake.

There are, and will always be so many things I wish I said, and wish I didn’t say, but your soul was kind, and I know you loved me regardless, and I know you knew I loved you too.

Love,
Your daughter, Beth, the one who is still grateful to have spent at least half her life with one of the most amazing people ever to walk the Earth.

Happy Valentine’s Day

valentines09_res

Sorry, Google. I know you had the best of intentions, but this is scary, not sweet.

There’s No Comfort In The Waiting Room

Well, it has been a while since I’ve written much of anything in a public forum. Even my letters to family and friends have been sparse and intermittent as of late. The other day, I posted to LiveJournal for the first time in nearly a year, and realized just how much has happened in the last year, and just how hard it is to briefly summarize such an eventful time period. In fact, it took me roughly an hour to write a few paragraphs in the form of a wedding announcement, just because I had no idea how to even start with what easily could’ve turned into a novel.

So, I suppose I’ll start with some recent news, and try to get into the habit of writing more in general. I really do want to tell the abundance of beautiful stories and happy memories Rio & I share, but it gets kind of exhausting with the sheer volume of how many there are to write about..

So, I’ll write about the last few days for now.

Sunday marked my last day of vacation before returning to Dreamhost. I had been off from work since the 15th, which is the longest vacation I’ve taken from work since … March of 2003, when I visited Christine in Portland. The trip to Vegas was also the first time I took a plane out of state since then as well.

Well, the vacation ended up being extended a few days, but not out of “good times”. Sunday night, I started developing immense pain in my abdomen. It was taking me way too long to sleep, and Rio’s snoring made me quite envious in my painful sleeplessness.

I eventually fell asleep, but awoke a few hours later on the bathroom floor with Rio asking me what happened, and me hysterically saying I didn’t know. He took me back to bed, and then a few hours later.. it happened again. This time, I had a nasty cut Rio patched up. The bathroom cabinet door had been broken from my fall.

I awoke, wanting to go to work, but as I got up for my usual morning routine, I passed out again. I wrote in sick, and said I was going to the hospital.

Despite that, it still took Rio & me a while to get there. I kept hoping it would go away.. that I’d sleep it off. The pain would be gone; I’d stop fainting. But, after 2 more of these spells, we had Fernando (Rio’s father / my father-in-law) pick us up and take us to the ER.

It’s hard to remember what happened exactly, in order after that.. all I really remember is that I laid on a bed, they did their tests which caused screaming and wailing in pain on my part, and it was determined that I had a “ruptured ovarian cyst” along with internal bleeding. I needed surgery.

This was the first time I had undergone any kind of surgery in my life, and I was terrified. I awoke later, and was transported to a bed with a relentlessly beeping IV that the nurses rarely tended to. Luckily, I didn’t have a roommate that night, and Rio spent the night next to me on the floor. It seemed like he got better sleep than I did — for some reason, I woke up at 34 minutes after the hour every hour. 12:34, 1:34, 2:34.. and so on.

He couldn’t spend all day with me, but he spent as much as he could. He came back with Robin (his mother / my mother-in-law) and he brought me a few things from the house. He couldn’t spend the night with me that night either (I had acquired a roomie during the day), but we watched as much of Little Miss Sunshine as we could until visiting hours were over.

Rio arrived this morning before I even woke up, and after hours of waiting with him, I was finally discharged. He took the day off to take care of me, and we re-watched Little Miss Sunshine from the beginning (previously mentioned roomie was nice, funny, and interesting, but also really noisy the night before), and then took a nap together before he left for class.

I feel lucky to be alive, and even luckier to have the best husband in the world. Now, I shall wait for our dinner to arrive, and retire to slumberland with the one who completes me …. :)

11.15.2007

On Thursday, November 15th, 2007, Rio & I took a plane to Las Vegas. We spent the morning furiously packing, as we should have done the night before. In fact, when Rio called the cab, I accidentally broke the zipper off the bag I was using for our shower products that I was rushing to close, due to my fears that the cab would actually get to our front steps before we could.

We waited nearly 15 minutes on the front steps anyway.

The cab driver was mildly amusing as he told us multiple stories of why he was no longer allowed in certain casinos, and we still arrived at SFO with over an hour to spare.

The process of checking in at the airport went relatively smoothly, although I did end up getting “randomly selected” for an additional security screening that involved a machine shooting air at me (or so they say — for all I know, it could have been poisonous gas). The plane was on time, and we arrived in Las Vegas on time as well.

Once we arrived at the McCarran Airport, Rio & I realized we had forgotten to print out the vouchers for the ground transportation we had purchased as well as the interactive wax museum. We weren’t quite sure how to deal with it at the airport just then, so we ended up paying the full $12 that it took for us to be shuttled off to ExCalibur, the hotel we had chosen to spend the next 4 nights at.

Despite being 4PM, rush hour had already started in Las Vegas, and it took a while to get there. I was somewhat edgy and overwhelmed by the flashy city and the multitude (or so it felt) of marriage-preparation tasks that extended past the highway we were stuck on.

We smoked our first cigarette in Vegas outside the ExCalibur, and talked about the weather — how it was the same temperature, but so much warmer. As we got up from the bench we were sitting on, Rio let me know about the friendly cockroach on the wall behind me. I wasn’t very appreciative of that, or the cockroach, and we checked in at the hotel.

Almost immediately, we were approached by a lady that wanted to give us free money, and a free dinner at the ExCalibur’s “Tournament of the Kings”. I was relatively wary of this, and wanted to know what the catch was. Apparently, it was taking some sort of trip in which we previewed their latest resort, and as soon as we consented to it, she was trying to take over an entire day of our trip. We told her how we were there to get married, but weren’t yet, and she said that was fine as long as we had some form of documentation that we lived together, such as a phone bill. When we could not provide this evidence for her, she apologized and said that she couldn’t offer the opportunity after all. The “opportunity” turned out to be a timeshare, and as we did not really want to share our time anyway, we weren’t all that disappointed.

We finally got to the room, and fretted over seemingly impossible tasks, like getting our marriage license, finding white shoes for my wedding dress, and renting a tuxedo for Rio. We decided that a lot of our anxiety was related to not eating, and ordered a 16″ pizza from room service for $15.50. The pizza seemed like a good idea during the first few bites, but, as Rio put it, it was “good food if you were drunk”, and left quite a bit to be desired.

We wandered around outside for a while as we tried to figure out how to get a cab — it wasn’t as easy as it seemed, even when they were everywhere. I realized early on as we walked through the Luxor why I had hated Las Vegas in my teenage years — it’s an agoraphobe’s worst nightmare. I have this habit of immediately finding every emergency exit I can whenever I enter a room, and it is hard enough to find any kind of exit at all there.

We finally found a Taxi Stop, where we took a cab to the Marriage Bureau. Our cab driver was extremely friendly and helpful. He congratulated us upon hearing we were getting married, and when Rio mentioned needing a tuxedo rental, the driver called a friend and found 3 possible places for us. Rio has a theory that he liked us because we were getting married for the “right reasons”. He had been driving a cab in Vegas for something like 10 years, and was probably used to impromptu intoxication-induced mistakes.

When we arrived at the Marriage Bureau, he told us to catch a cab by walking “that way” (motioning towards downtown), and not “that way” (motioning towards Who Knows).

“It’s not that it’s dangerous or anything, just go .. ‘that way’”, he said, motioning towards downtown again. I imagined the other way was probably the Las Vegas version of the Tenderloin and agreed.

We stepped out of the cab, and we were immediately approached by two men who wanted to sell us on their wedding chapel. We told them that we had already reserved a wedding chapel, but they were nice and continued to congratulate us on our wedding just the same.

We went inside, and were told to each fill out a form, an application of sorts.

There were two other couples in the room with us, and as we waited, Rio & I made up stories about them. The first one was trying to get a Visa (we overheard them talking about some sort of complication involving Guatemala). The second one was just wearing a wedding dress for the hell of it when her husband-to-be approached her and said, “hey, nice dress — wanna get married?”

We triumphantly left the Marriage Bureau, license in hand, and the same two men who had so eagerly promoted their chapel earlier also immediately hailed us a cab, so we never had to worry about going “that way”.

We got back to the room, relieved and happy with the completion of the “first step”. Although it was only 11PM, room service was closed, and we ended up going to the 24 hour Krispy Kreme in the ExCalibur for 6 donuts. I commented on the “circus horror movie” aspect of Las Vegas as we went through the floor, watching the glowing faces of the zombies that guarded each slot machine.

Around midnight, we resigned to slumberland, anxious with the anticipation of our wedding in 15 hours.

1+1=1

Rio squeezed my hand; I squeezed back. Our anxiety over the right words to say at that moment had been consuming us for the last half of the dinner, the way the last half of my overpriced macaroni and cheese remained uneaten in front of me.

It was the first time he had ever met my little brother, and the third time he had spent any time with my dad. My brother and him had seemed to click earlier over a common interest of juggling, and my dad brought up a story of magic tricks from my childhood that I had attempted to use as an introduction to our own story earlier that week. He said he had something to announce to my dad, his voice quivering, his hand firmly holding on to my own.

“I wanted to ask you…”

I had thought, for a second, he was asking permission, and feared a negative reaction. I interrupted him: “just say it!”

He was confused, as were my brother and dad. I felt bad, seeing how difficult it was for him to get as far as he had, our own shared fears inducing the desire for secrecy, and encouraged him to go on. He stumbled on his words, but quickly regained composure.

“I asked Beth to marry me, and she said ‘yes’. I wanted to ask for your blessing.”

My dad, was slightly surprised: “she did?”

There was a slight lull of quiet confusion, and my brother, as if to prompt my dad’s own appropriate response, said “congratulations”.  My dad said Rio met his base expectations for a husband, and as part of the father role, asked Rio about his ability to provide.

I couldn’t help but think about our third date. We had walked up to the top of Church St. where Rio found a couch and asked if I wanted to sit down. He had joked at the time, “see, baby? I’m a provider!” Now, he was serious as he answered my dad’s questions.

My dad told him he met his qualifications for a husband, and gave us the blessing we had requested. We could finally exhale.

My brother had said he wasn’t shocked, in fact he already knew, and almost said something about it to my dad earlier. It was obvious to him, just as it was to Blake when he put his trademark skepticism aside to tell me that he had “a good feeling about this one” a month earlier.

My dad asked about plans of children, which Rio took as a sign that my father thought our wedding plans were a result of an unplanned pregnancy. “Nothing is in the pipeline now”, he answered quickly, as I said “one day, but when we do, it will be because it was planned, and not a mistake”. My dad said, just as I had predicted and warned Rio of, “I just want some biological grandchildren of my own!”

We walked along 4th st, and descended the stairs into the BART station. My brother and dad were going one way, and we were going the other. Their train arrived shortly after I gave brief details of our engagement and wedding, and they were gone.

Rio and I felt nearly light-headed after the weight of our heavy anxiety regarding the unknown outcome was lifted, and cuddled on BART as we talked.  It seemed even more real… we were getting married.

We got home, and sat on the steps to smoke. We stared in each others eyes, and suddenly it hit me: I wasn’t just seeing the future. I was seeing my past and present too. I was seeing what John and Blake had seen, what I had witnessed between my father and Gail the first time I met her. Not just love. Life.

$100 Redemption

4 years ago. March 3rd, 2003. 3/3/03.

We were supposed to get engaged that day. Instead, he took me out to dinner and gave me a necklace.

I had lived in Delaware for over three years at that point. I made the decision to move back to California two days later, and two weeks later I was gone. I haven’t been back there since.

Last weekend, I went with Bunny and Alex to see a psychic. We went for the cheapest version: a palm reading for $15. We each went our separate ways to do this.

I was taken into a kitchen that was filled with cigarette smoke, and sat down at dining room table with an old woman. I held out my palm, somewhat embarrassed that I didn’t know the right way to do it. I reminded myself to keep a straight face. They don’t read your palm: they read the reaction to their words. They know when they’ve hit a chord, and go from there.

She looked at my life line, and told me I had a long life ahead of me.

“Ha!”, I thought. She obviously didn’t know how many cigarettes I smoked, or just how unhealthy my lifestyle had been as of late.

And then, she told me how she sensed I was a good person. I was someone that wanted to help people, that cared deeply for everyone. I was someone that wanted to take care of those in need, and sometimes this left me disappointed when I wasn’t able to.

Lately, I’ve been saving all of my change and giving it to homeless people.

She looked at me, directly into my eyes. “You’ve lost the love of your life.”

Keepastraightfacekeepastraightfacekeepastraightface.

“You loved him, but he deceived you. He changed. He wasn’t himself anymore. You hurt him; you left him. You haven’t been able to love anyone since.”

“There have been many others that have come and gone since then. They wanted to give you love, and sometimes you entertained the idea, but your heart is broken, and you have too many shut doors. You won’t let love back in.”

She went on to tell me how I would continuously have a lot of money come to me, but would spend it just as quickly. I couldn’t save any of it.

Most of all, she really wanted to drive home this concept of closed doors, and how the only way to open them was to cleanse my soul. She would light a candle every week for 5 weeks, and I would be pure.

These candles were $20/piece. I said I would think about it, but my mind was already made up. My redemption didn’t have monetary value, and if it did, it wasn’t coming in the form of $100 worth of candles.

She kept trying to sell me on this idea. She was insistent my soul could not be cleansed without these candles, and I would never be able to love again without them.

“What do you want, more than anything, out of your life?”

“I just want to be alone.”

She looked surprised, so I said, “I mean, I want love, sure. I know I have too many closed doors, but, like you said.. I don’t have money, because I spend it all and don’t save any. So, I can’t really afford to open those doors at this time.”

She kept the $5 left over from the $20 I gave her, and said she’d light a small candle for me that night.

A Fierce Nostalgia For The Present

Looking at those photographs, I remembered how my parents had never said “I love you” to each other. How they had said only “I miss you.” At the time, I hadn’t been able to figure out what this meant. But now it seemed clear: this was how they defined their love—by how deeply they missed each other when they were together. They felt the loss before it happened, and their love was defined by that loss. They hungered even as they ate, thirsted even as they drank. My mother once told me to live my life as if I were already dead. “Live each day as if you know it’s gonna be gone tomorrow,” she had said. That was how my parents loved each other, with a desperate, melancholy love, a fierce nostalgia for the present.

Danzy Senna, Caucasia